Help us make a difference
for kids with NKH

By joining The Hive you’ll receive…

A special Hive only newsletter. 3-5 emails a year with special sneak peeks, early access to events, and announcements, and we’ll share the impact of your generous donations.
A small bee themed thank you gift, and a thank you christmas card each year.
Hear about the research updates we receive before we share with anyone else.
You’ll be offered places before anyone else (for things like the London Marathon, or the London Landmark Half!)
The satisfaction of knowing that you’re having a genuine impact on the work that can be done for kids with NKH.

The power of your funds

£10 a month

Help families find answers
£10 a month could help put trusted, medically reviewed NKH information into the hands of newly diagnosed families, giving parents clear information at an incredibly difficult time, right when they need it most.

£25 a month

Connect NKH Families
£25 a month could help bring families affected by NKH together, creating opportunities to share experiences, find support and build friendships with people who truly understand, so no family experiences NKH alone.

£50 a month

Support the scientists turning research into treatments
£50 a month could contribute towards specialist research at UCL and the University of Colorado, exploring gene therapies and other potential treatments that could change the future for children living with NKH.

Why ‘The Hive’?

It’s a common folklore in the NKH Community that from an aerodynamic standpoint, bee’s should be able to fly. And yet, they do. Parents of children with NKH are often told their child will die, but many fly.
It seems fitting that a community of donors who support children with NKH is called ‘The Hive’.

Join The Hive

Our community of monthly donors bringing real change for kids with NKH

Hive FAQ

What is a recurring gift?

Recurring gifts are ongoing monthly, quarterly, or annual contributions made automatically via your debit/credit card or via your bank account (such as a standing order). While recurring gifts at any frequency are impactful, monthly gifts are the best way to ensure we’re supporting as many NKH kids as possible, and funding an NKH cure so we can, one day, give them a future.

Why is monthly and recurring giving so important?

Monthly, quarterly, and annual gifts provide the steady, reliable support we need to help support children with NKH – enabling us to use donor pounds wisely and invest in programmes that can give children with NKH a real future. It allows us to plan, and be strategic with our funds. With recurring gifts, you also save time and effort and help reduce any administrative costs. That means you can help us devote even more resources to children with NKH

Where can I learn more about the impact of my recurring gifts?

Thank you for all you do! We send quarterly emails to our Hive Members (that’s our monthly donors!) with updates on the impact you have made. If you’re not on the list and would like to be – reach out and let us know: hello@mikaerefoundation.org.

How do I update my contact information, payment method, or communications preferences?

It depends on how you set up your recurring donation. If you’ve donated through donorbox, justgiving, paypal, or via bank transfer you can login to your account and make changes there.

Or, you can email hello@mikaerefoundation.org at anytime. We care about your privacy, so please do not send your credit/debit card or bank information via email.

We’re committed to using your gifts wisely, so you might be interested to know that giving by bank transfer via a standing order is the most efficient payment option. It keeps our processing costs down and makes your gifts go further to help kids with NKH.

What is a standing order and how do I set one up?

A standing order is a regular payment of the same amount that’s paid out from your bank account either regularly or as a one-off on a specified date.

To set one up, you’ll need to log in to your internet banking, or speak to your. You need to know the exact amount you want to pay out in advance. You can also change or stop a standing order at any time.

If you’d like to set up a standing order to donate to the Mikaere Foundation, you will also need our banking information:

Account Name: Mikaere Foundation
Account Number: 31192394
Sort Code: 50-21-01

If you are in the UK, please consider boosting your donation by 25% at no cost to you, via gift aid. Please fill out the Gift Aid form.

How do I change the amount I give or cancel my monthly or recurring gift?

We understand that financial situations can change at any moment. You can increase, decrease, pause, change the frequency, or cancel your recurring gift at any time – no pressure or judgement.

It depends on how you set up your recurring donation. If you’ve donated through donorbox, justgiving, paypal, or via bank transfer you can login to your account and make changes there.

If you’d like, you can email hello@mikaerefoundation.org to let us know you’re cancelling, which will mean we can stop any follow up communication related to your monthly giving payments.

Can I choose or direct my recurring donations to specific projects?

As a Hive member, your donations provide support where the need is the greatest. Whether that’s through NKH research, or supporting newly diagnosed families. Because The Mikaere Foundation focuses on helping as many children with NKH as possible, as efficiently as possible, you can trust that your donations are going where they’ll have the biggest impact.

Will my employer match my recurring gift?

The Mikaere Foundation has an employer matching gift program through Benevity. If you work for, or are retired from, one of the many companies with a matching gift program, your gift can go twice as far to help children with NKH. If your employer offers match gifts through a different platform or has a Payroll Giving scheme (called Give as you Earn), reach out to us: hello@mikaerefoundation.org. We can have a discussion about how to get your donations matched.

What if I still have questions?

Get in touch, we’re always happy to hear from you. hello@mikarefoundation.org

Help us make a differencefor kids with NKH