The Mikaere Foundation

Founded in 2017 (previously as the Foundation for Nonketotic Hyperglycinemia), the Mikaere Foundation is a (soon to be registered!), UK-based charity that raise funds for NKH Research, to further the knowledge of and bring about effective treatment options. We also provide information and support to families living with NKH. It’s not an easy path, and because of the rarity of NKH, information can be difficult to come by. We hope to change that.

Meet Mikaere

Mikaere was born with Nonketotic Hyperglycinemia in October 2016. His family spent countless weeks in Intensive Care, hospital and hospice. They’re lucky to currently be home with their little guy. He’s well-loved, but living with NKH is not what they expected. They were determined that their little boy would make his mark on this world and wanted to contribute to the NKH community that has supported their little family.

For more information about their story, please visit:

Website + Blog:
Instagram: @teammikaere

The Trustees

The Board of Trustees includes:

  • Elly Hulance
  • Sam Hulance
  • Wendy Hulance
  • Andy Hulance
  • Kirsty Lester
  • Jamie Irving
  • Tony Collins


Email us at hello [at] mikaerefoundation [dot] org