Supporting families with children who have Nonketotic Hyperglycinemia
Raising awareness, connecting families, bringing
hope and building futures.
The Mikaere Foundation supports children living with Nonketotic Hyperglycinemia (NKH), a rare and terminal neurometabolic disorder.
What we do
Fund NKH Research
We’re partnered with UCL and the University of Colorado to fund research in effective therapies for NKH, such as gene therapy.
Provide NKH Resources
When a child is diagnosed with NKH, it’s a scary time. It is very rare that any information is given. We help with that.
Host Family Meet Ups
Family meet ups offer connection, emotional support and provide a safe space to share struggles, find empathy and reduce isolation.
How you can help
Donate to the Mikaere Foundation
It is only thanks to your donations that we can give life-threatened children and their families the hope and support they need.
Fundraise for the Mikaere Foundation
Choose a challenge, pledge your birthday or let us inspire you with some great fundraising ideas.
Volunteer with the Mikaere Foundation
We have a few open roles, if you have the specialist skills needed (or, if you just want to lend a hand!) – get involved!
