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Will you help us gift children with NKH a lifetime of Christmases?
For some children with NKH, this Christmas will be their last.
With your support, we can give children born with NKH decades of Christmases.
“It’s all a parent wants – to spend Christmas with their child. Not worrying if this Christmas might be the last one.”
– Sam, NKH Parent
Why we need your support
One in three children born with NKH (Nonketotic Hyperglycinemia) won’t see their first birthday. This Christmas might be the only Christmas they have with their families. NKH is a rare and terminal metabolic disorder, limiting the lives of children who live with it.
That’s why the Mikaere Foundation is raising funds into an effective treatment for NKH. With our partners at UCL and the University of Colorado, we’re working towards an effective treatment for NKH. This would give children a future, and decades of Christmases.
But we can only do it with your help.
Your gift will help transform the life of children with NKH. It will have a lasting impact on the lives of children with NKH and their families, drastically improving their quality of life.
Please consider donating today to support this live-changing work. Together, we can give children with NKH the futures they deserve.
See below to find out what your donation could help fund.
£25
could fund 15 days worth of outreach, providing NKH information to newly diagnosed families, those living with NKH; their carers, families and friends; and their supporting medical professionals/ therapists.
£55
could buy special restriction enzymes. These work like molecular scissors to cut up the long strands of DNA in our cells. This is vital in helping us learn more about the genetic mutations of NKH.
£125
could fund half a day of a post doctorate researcher, analysing sample assays, which tell us if NKH gene therapy is working in our models, getting us closer to a treatment for children with NKH.
* When you make your donation, the money goes to where the need is greatest. This is typically towards NKH Research into Gene Therapy or similar, with our research partners at UCL.