Together,
we’ll give NKH children a future
The Mikaere Foundation supports children and families impacted by Nonketotic Hyperglycinemia (NKH), a rare and terminal neurometabolic disorder.
Our vision: a world free of the effects of NKH.
What we do
Fund NKH Research
We’re partnered with UCL and the University of Colorado to fund research in effective treatments for NKH.
Provide NKH Resources
When a child is diagnosed with NKH, it’s a scary time. It is very rare that any information is given. We help with that.
Family Meet Ups
Meeting families who live a life like yours, who really do get it, make life with NKH easier to manage. Connection, it’s important.
How you can help
Donate to the Mikaere Foundation
It is only thanks to your donations that we can give life-threatened children and their families the hope and support they need.
Fundraise for the Mikaere Foundation
Choose a challenge, pledge your birthday or let us inspire you with some great fundraising ideas.
Take on a challenge
Whether you’re chasing a PB or just looking for your next event, your efforts are helping us change the future of NKH.
