Supporting families with children who have Nonketotic Hyperglycinemia

Raising awareness, connecting families, bringing
hope and building futures.

The Mikaere Foundation supports children living with Nonketotic Hyperglycinemia (NKH), a rare and terminal neurometabolic disorder.

What we do

Raise funds for Research into Nonketotic Hyperglycinemia (NKH)

Currently, there is no effective treatment for NKH. Medicines currently available for Nonketotic Hyperglycinemia do not stop the progression or relieve symptoms of the neurometabolic disorder.

We’re partnered with UCL and the team under Prof. Nick Greene to better understand the disorder progression and to develop novel therapies, such as gene replacement therapy.

Provide clear information about NKH via a patient informational website

When a child is diagnosed with NKH, it is very rare that they are given any information. It can be a very scary time. is the only website of its kind, sharing in-depth medical knowledge about Nonketotic Hyperglycinemia (NKH) specifically for families who live with NKH.

Provide support for NKH specific initiatives

There are many behind-the-scenes initiatives we’re supporting, such as working with Public Health England to form a National NKH Register and working with the UK metabolic refferal centres towards getting Nonketotic Hyperglycinemia informational brochures into NICU’s for families who are newly diagnosed.

When we can see a need that will help the experience of families living with NKH, we’re working towards a solution.

How you can help

Donate to the Mikaere Foundation

It is only thanks to your donations that we can give life-threatened children and their families the hope and support they need.

Fundraise for the Mikaere Foundation

Choose a challenge, pledge your birthday or let us inspire you with some great fundraising ideas.

Volunteer with the Mikaere Foundation

We have a few open roles, if you have the specialist skills needed (or, if you just want to lend a hand!) – get involved!

Get moving with the NKH 100 Mile Virtual Challenge

Move 100 Miles in July 2024, along the Thames Path – Thames Barrier to Streatley! Walk, run, cycle, swim, dance – you choose! Raise £150 to support your challenge. Anyone, anywhere can participate. All you need is a smartphone. All proceeds go to NKH Research!

Challenge yourself for Nonketotic Hyperglycinemia (NKH)

The Challenge Events are a series of 10km, 25km or 50km ULTRA walks/runs across the year. Available all over the UK these events are a great way to raise funds for NKH Research and to challenge yourself.

Skydive for NKH Research

Raise funds for NKH Research and skydive for FREE! Jumps available to book at 18 airfields across the UK with various days and times to choose from, all year round.

Raise free funds for NKH wth your everyday shopping!

Give as you Live Online is a free way to raise money for charity when you shop online.

Shop at over 6,000 leading stores via our website, Donation Reminder or App and you’ll raise free funds for The Mikaere Foundation.

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