Website Content Creator/Copywriter/Designer
When a family receives a diagnosis, they are told hard to hear things. That their baby is likely to be severely disabled. That their newborn is likely to die imminently. They’re told by their consultants that they don’t know much about this disorder, and send them on their way. Parents immediately google NKH.
We run foundationnkh.org, a patient information website for families who have just received a heartbreaking diagnosis. We’ve done our best to fill the gap and share knowledge for families who are trying to accept their unacceptable.
But, we’re a small, time poor team, and the website is not what it could be. Some pages only have half the content they should, some pages are unhelpful, some need updating.
We’re looking for someone to help review the content, pare back what doesn’t need to be there, and curate/write the content that does.
Are you a UX designer, familiar with arranging text-heavy content so it makes sense? You are a copywriter? Do you have an interest in biomedical information? Are you familiar with raising a severely disabled child with complex medical needs?
If you are any of the above, we’d love to chat!