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Happy Giving Tuesday! Help us fund a cure for NKH this Christmas. Today is the international day of giving support to the causes you love. It's a perfect time to consider making a donation to the Mikaere Foundation – especially as we have such a crucial task ahead. Right now, we are on the cusp of change. Gene therapy research being done at UCL and Notre Dame has shown success in mice and we are on the verge of having this LIFE-CHANGING research picked up by a pharmaceutical company. Our kids with NKH deserve so much more than what they're given. So please, give your support and donate on this Giving Tuesday. Help us fund a cure. If you have recently donated, thank you so much for your support. We appreciate you! If you are unable to donate at this time, you can: - Set your Amazon Smile charity to the Mikaere Foundation - Review Charlie the Crow or Eva the Adventure on amazon, every review helps! #nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #teamMikaere #glycineencephalopathy #nkhcansuckit #fundraising #charliethecrow #childrensBook #booksforWednesdays #teamMikaere #theMikaereFoundation

Both @zoeellison__ and Elly have SIGNED a stack of Charlie Books, so if you're interested in signed copies, with bonus original illustration featuring Charlie, they're available now over on Zoe's website #linkinbio Each book features 32 full colour illustrations, and a bonus sensory section for children with disabilities. The sensory section includes audio/video links, AAC symbols, cut outs, sensory activities and more. Unsigned copies are available on Amazon. All royalties from each book sold go to The Mikaere Foundation to fund research into Nonketotic Hyperglycinemia (via Prof. Nick Greene and his team at UCL). They make perfect Christmas gifts if you're looking for something special :) #nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #teamMikaere #glycineencephalopathy #nkhcansuckit #fundraising #charliethecrow #childrensBook #booksforWednesdays #teamMikaere #TheMikaereFoundation

Wahey! We're now accepting donations via justgiving! Justgiving has been a big platform for a lot of our events pre-The Mikaere Foundation, so we're excited to bring our little charity to the platform. It's super good for team events and small one-off fundraising campaigns. If you'd like to fundraise for The Mikaere Foundation, justgiving is a great fundraising partner. Great for challenges (like when Sam walked the Thames Path) or team events (lol, the Chicken Nugget Challenge!) https://www.justgiving.com/mikaerefoundation See you there?

We're now on Amazon Smile! Hurrah - if you shop on Amazon, please consider setting your amazon smile account to the Mikaere Foundation: https://smile.amazon.co.uk/ch/1200720-0 #linkinBio Through no cost to yourself, you can support NKH Research by shopping through smile.amazon.co.uk and setting the Mikaere Foundation as your charity of choice. Every single penny you raise will go to NKH Research, as the charity overheads are covered by the founders (unlike other NKH charities). This means your fundraising can go further towards NKH Research and helping us fund effective treatment for Nonketotic Hyperglycinemia (can you even imagine?!) It's very easy, visit: https://smile.amazon.co.uk/ch/1200720-0 and set the Mikaere Foundation as your charity of choice! Thanks for all your support - you guys are the absolute bee's knees! #nkhawareness #nkhcansuckit #nonketoticHyperglycinemia #glycineencephalopathy #raredisease #nkh #ifhnkh #glycineencephalopathy #cureNeeded #complexmedicalneeds #fundraising #teamMikaere #theMikaereFoundation

Hurrah! We’re now an OFFICIALLY registered charity in England and Wales: charity number 1200720.

It was a A LOT of work, but work we were pleased to do (obviously). It required a lot of policies (ensuring our due diligence) and work from our board of trustees, but we imagine it to be smooth sailing from here on out. Keep an eye out, we’ll be available for fundraising on Justgiving, Facebook, Instagram and Amazon Smile in no time!

As always, we’re fundraising for an effective treatment for NKH, because right now? There isn’t one. There are literally hundreds of kids who take caustic medication (or perhaps don’t, because the current options are so awful) who would benefit from effective treatment. It always astounds us that the only thing between an effective, life saving treatment and these kids is money. So, here we are. Fundraising for a cure. Any money raised goes to NKH Research, and the costs/overheads of the charity are covered by our founders. Which means every single penny raised goes towards giving kids with NKH a future. Look at us go - The Mikaere Foundation is official! #nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #glycineencephalopathy #nkhcansuckit #fundraising #fundraisingForAnNKHCure

It was Mikaere’s 6th Birthday yesterday, and the Hulance family raised funds for NKH Research in his honour. NKH is considered a terminal disorder. Most children won’t see their first birthday, and for those that do, the average age of death is between 3-5 years old. For Mikaere to have reached 6 years old is nothing short of a blessing. Happy Birthday Mikaere! 
If you would like to wish Mikaere a Happy Birthday, you can donate at mikaerefoundation.org/donate/ #linkinbio #nkhawareness #nkhcansuckit #nonketoticHyperglycinemia #glycineencephalopathy #raredisease #nkhAwarnessDay2022 #someoneFundACure #nkh #ifhnkh #glycineencephalopathy #cureNeeded #complexmedicalneeds #fundraising #happyBirthdayLittleBee @teammikaere