Inflatable Obstacle Course

Inflatable 5k

Are you ready to take on the World’s largest and best inflatable run ever?

Location: Various locations around the UK
Distance: 2.5km, 5km, 10km or 15km
Fundraising target: £150
Registration Fee £35

Run an inflatable obstacle course
for kids with NKH

The world’s largest and best fun run the ‘Inflatable 5K’ has got even bigger and bouncier. This unique Inflatable Obstacle course has less running and even more obstacles! With four different distances – 2.5K, 5K, 10K, 15K – to choose from, anyone can take part and is an awesome day out with family and friends.

Date: Various dates
Locations: Various locations up and down the UK
Registration fee: £35 (£30 for the 2.5km disance)
Minimum sponsorship: £150, excluding gift aid (£100 for the 2.5km distance)

Charity Place

Apply for a charity place with the Mikaere Foundation today!

Registration Fee: £35
Fundraising Target: £150

BOOK YOUR COURSE

(For the 2.5km distance – £30 Registration fee and £100 Fundraising Target)

I have questions

When joining Team Mikaere, you’ll receive…

– dedicated support from our event co-ordinator, Elly
– a fundraising guide with advice, hints, and tips
– a personalised Mikaere Foundation running vest or tshirt
– an amazing race day experienc
– the knowledge that because of your fundraising, we’re able to make a real, tangible difference into the research that can be done so one day, an NKH diagnosis will not be so devastating.

Why are there sponsorship targets for these event places?

We have to pay for our places in the various events. For some of the most popular events, these can be very expensive. To ensure that we contribute as much of your fundraising as possible towards supporting children with NKH, and into NKH research we, like other charities, have to set a minimum sponsorship target.

Do I need to set up a fundraising page?

When you sign up with us, we’ll send an email with instructions on how to set up your fundraising page. We usually suggest JustGiving. You can personalise your page, add photos, talk about what you’re doing and why, set a fundraising target and then send your page link to your friends, family and colleagues so that they can sponsor you easily and securely. All money donated online is received directly to the charity.

Top tips for fundraising success

Every penny you raise from your event will help build a future for children with Nonketotic Hyperglycinemia (NKH) – a rare and terminal metabolic disorder – and we’re here to support you every step of the way.

Fundraising ideas
Organising another fundraising activity alongside your main challenge will help you smash your goal. Here are some ideas:
– host a quiz
– arrange a raffle
– hold a sweepstake on how long your challenge will take, or the distance you’ll achieve
– organise a bake sale at home, at work or in your community

Your fundraising welcome pack
Once you’ve signed up for your challenge, we’ll send you a fundraising welcome pack that’s full of advice on how to meet – and beat – your target.

Setting up a JustGiving page is a great way to fundraise online. Share your link with family, friends and colleagues, and watch the donations roll in. You’ll be sent a link that you can use to sign up.

You can use JustGiving to explain why you’re taking on your challenge for the Mikaere Foundation, keep track of how much you’ve raised, and even share your training progress using Strava so your supporters can see how well you’re doing. The more you update and share your JustGiving page, the more donations you’ll receive.

Gift Aid
If your supporters are UK taxpayers and their donation is voluntary (not proceeds of a sale), we can claim an extra 25p for every £1 donated – at no extra cost to them. Make sure they fill in the Gift Aid form in your fundraising pack or tick the correct boxes if they’re donating online.

Sending in your donations
If you’re fundraising through JustGiving, the donations will automatically come to us. If you’ve got cash to pay in, you can do this online by bank transfer or by post.

Why we need your support

One in three children born with Nonketotic Hyperglycinemia (NKH) won’t see their first birthday. For those that do, they are likely to be profoundly disabled, with an average life span of 5-8 years. An NKH diagnosis is brutal, it’s a rare and terminal metabolic disorder no parent would wish for their child. With your support, one day, we’ll be able to give every child born with NKH a future.

FAQs

What happens if I don’t reach my fundraising target?
Don’t worry – we’ll help you get there! We’ll offer you lots of fundraising support in the run-up to your event and in the days after to ensure that you achieve your minimum fundraising target, including going through your fundraising plan beforehand. The target will need to be reached by 42 days after the event, so there’s plenty of time!

Do I get a vest or tshirt to wear on the day?
Yes – whether you have your own place or a charity place, just fill in the form to request your running top or vest. We’ll send it out approximately three weeks before race day.

What’s it like?

Why we need you

The Mikaere Foundation needs your support more than ever. One in three children born with NKH (Nonketotic Hyperglycinemia) won’t see their first birthday. This year might be the only year they have with their families. NKH is a rare and terminal metabolic disorder, limiting the lives of children who live with it.

By fundraising, you’ll help fund:

Groundbreaking research into effective treatment and gene therapy therapy for Nonketotic Hyperglycinemia (NKH) – drastically changing the outcome for children born with NKH.
Support services for children and families living with NKH. With NKH comes seizures, dystonia, pain and developmental delay.
Outreach to newly diagnosed families, so they have support in their corner, right when they need it.
Getting NKH specific information to families, nurses, therapists, carers and doctors.

But we can only do it with your help.

Your gift will help transform the life of children with NKH. It will have a lasting impact on the lives of children with NKH and their families, drastically improving their quality of life.

£50

could fund special restriction enzymes, used in NKH Research. These work like molecular scissors to cut up the long strands of DNA in our cells. This is vital in helping us learn more about the genetic mutations of NKH.

£100

could fund a months worth of outreach and disorder information, providing NKH information to newly diagnosed families right when they need it most.

£1250

could fund a week of a post doc researcher, analysing sample assays, which tell us if NKH gene therapy is working in our models, getting us closer to a cure. We’re on the cusp of a clinical trial, and you could help tip us over.