Fundraise for children with NKH
Get involved
We’d love you to join the Mikaere Foundation community.
Together our voices are louder, and we can fight harder and do more for everyone affected by NKH. There is no cure for NKH – yet. But research is progressing faster than ever before. We’re making real strides.
And your help can, and will, take us further. Find out how, together, we can move closer to our vision of a world free from the effects of NKH.
Explore what you can do today
Find a local event and support children with NKH: raising funds, spreading awareness, funding research, building community and bringing hope to families battling this rare disorder.
Inspired to do something different to support children with NKH? From bake sales to quiz nights, skydives to race nights. Raffles, auctions, or anniversary celebrations. We’re here to help you fundraise, your way. Whatever you have in mind, we’re here to help.
On average, a collection tin might collect around £30 over six weeks – it adds up! The more locations we have tins, the bigger the impact we can make. Can you place a collection tin in your local store or cafe?
Four dual-language children’s books, where the royalities of each book support children with Nonketotic Hyperglycinemia (NKH). Four books: Charlie the Crow, Eva the Adventurer, Betty the Bee has lost her way and The Purple Racing Car. Every book sold brings us closer to a cure.
Our community of monthly donors bringing real change for kids with NKH – they show up month on month, and because of their reliability, we’re able to be strategic with our efforts. It makes a a real difference.
Help us raise funds for children with NKH – and NKH research – just by doing your everyday online shopping in over 6000 retailers. It only takes 2 minutes to join, so start raising FREE donations today!
Get your Fundraising Pack
Our fundraising pack has everything you’ll need to run a fundraiser for children with NKH and the Mikaere Foundation.
Posters, social tiles, tips, tricks and how to pay in your funds!
Run your own fundraiser
Inspired to do something different to support children with NKH, and fund a cure? We’re here to help you fundraise, your way. Whatever you have in mind, we want to help make your fundraising dream a reality.
Your help can, and will, take us further. Find out how, together, we can move closer to our vision of a world free from the effects of NKH.
4 steps to event planning perfection
1. Make a plan
This is the time to really think about what you want your event to be and how it will look. Planning is key, but to get you started why not start thinking about:
- Decide on a fundraising option (download your fundraising pack for some great ideas and resources!)
- Pick a date, time and venue, and book everything in! You may need permission. You might need to check with the local council, landholder or venue owner
- Is your location is accessible for everyone, including chair users or people with walking aids
- Check the legalities, make sure you’re in the clear.
2. Ask people to support you
Set up a Justgiving Page
- Set up a Set up a JustGiving page – its the quickest and easiest way to kick-start your fundraising. You can set up a page that shows how much you’ve raised at every step.
- Personalise your fundraising page with pictures, updates and why you’re fundraising to to support children with NKH. You’re joining an incredible community and your story may inspire someone else to get involved or donate.
- To get started, visit our JustGiving page and hit the fundraise for us button.
Consider Sponsorship
- Think about businesses and groups in your local area that may be able to support your fundraiser.
- Whether you’re looking for a cash donation to cover the cost of venue hire, prizes for a raffle or volunteers to help out on the day, there are lots of generous people and organisations you can ask.
- Ask your employer if they do employee matching, and if they would consider matching your fundraising.
3. Spread the word
The bigger the event, the more money you can raise to help fund a cure for NKH and support children with NKH. So why not tell as many people as possible about what you’re doing?
Contact your local media
Telling your local newspaper, radio or TV station can be a great way to let your community know about your event. Get your story out there! You can use our press release templates to get the word out.
Share on social media
When your fundraiser is ready to go, make sure everyone knows about it! You can share your JustGiving page on Facebook or Twitter and include it in your email signature. Download our premade social tiles. In the run up, keep your supporters in the loop with regular updates on social media and tag us on Instagram so we can share too!.
Tell everyone!
Don’t forget your email contacts and internal websites, newsletters or noticeboards. Your friends, colleagues and employers will be keen to hear your news, see pictures and follow your progress.
Tell us too
Let us know you’re holding an event, so we can support your efforts, and can share on our channels too!
4. Finish in style
On the day
There are lots of things you’ll need to think about on your event day. Here are a few important things to remember:
- Enjoy yourself! You’ve done something amazing
- Check the weather, even if you’re holding an indoor event it can make a real difference
- Take lots of photos and videos and share them on social media. Make sure to share your justgiving link, so people who can’t make it can still contribute
You did it!
When your event is finished, you have one of the most important jobs left to do: thank everyone who helped along the way.
This could be your sponsors, people who came or anyone who contributed. Everyone will want to know how much you’ve raised and how many people you had participate.
Pay in your funds
Ready to pay in your fundraising?
– Pay in Online
– Download the Pay in Forms to pay offline
Need banners, wristbands or a speaker?
We’re happy to help, if you need any support, graphics or ideas. We can support with marketing paraphernalia, and potentially a speaker from a family living with NKH to share their experiences and how vital research us. Let us know!
We’re also happy to share your fundraiser on our social channels, and we love to see photos on the day! Tag us @mikaereFoundation or use the tag #mikaerefoundation so we can see what you’re up to.
Need some ideas?
There are many different ways you can fundraise:
Hold an event
This is a very simple way to fundraise, and can be great fun! The idea is you hold an event (ideas below), and collect the ticket price (or donations) for charity. These can be small events, or large – we’ve done both!
You can extend the fundraiser with games (like a raffle or tombola, or the water vs wine pull. You wrap 25 bottles of old wine bottles (with screwcaps!) filled with water in newspaper. You wrap five bottles of wine in newspaper. They all look the same. People pay to pull a bottle, if it’s water, it’s rewrapped and returned to the table, if they unwrap wine, they can keep it!).
Event ideas might include:
- A charity concert
- A bake sale
- A BBQ
- A themed party
- A virtual movie screening
- Online, or in person quizzes
- A fun run
- An art exhibition
- A wine tasting
- Hold a murder mystery night
- A Garden Party/Sale
- A Birthday Party
- A charity cooking class
- Hold a fun jumper day
- Ask for donations for your birthday, or to celebrate your wedding
Take on a personal challenge
It can be very rewarding to push yourself to do something, and even more fun to do it with a group of friends!
With a personal challenge, pick your challenge, set up a campaign page linked to the Mikaere Foundation (we like justgiving or gofundme) and ask your friends and family to sponsor you.
Personal challenges might look like:
- Riding long distances
- Running long distances(like a marathon)
- Running everyday for a month
- Run 30 5k’s in a year
- Walking long distances
- Taking on a tough event (like Tough Mudder)
- Shave your head
- Climb a mountain
- The equivalent of Lent (Dry January etc)
Group challenges are also quite fun. You can set up a ‘team’ page on justgiving, which allows you see how much your team has raised collectively, while each person has their own page. Group challenges might look like:
- A chicken nugget challenge
- A group sky dive
- A 24 hour challenge (24 hours of gaming on twitch! Making music in a concert! Relay racing!)
- Man vs Food eating challenges
- Sponsored silence
- A group inflatable 5k or Tough Mudder
Make and Sell items
This can be very rewarding. Sell an item (anything goes!), with the proceeds going to charity. This might look like:
- Hold a silent auction, this might be things you have, things you’ve made or items that have been donated
- Selling clothes you’ve designed (such as books, tshirts or hoodies)
- Selling things you’ve made (such art, toys or jewellery)
- Hold a carboot sale or a garage sale, selling things you no longer need
- Sell old clothes on platforms such as Vinted
Corporate or Community Support
- Nominate the Mikaere Foundation as the charity of the year at your workplace, church, or school.
We can provide supporting paraphernalia (such as posters etc) in your branding, if that would be helpful. - Nominate the Mikaere Foundation for a nonuniform day at your local school or a bake sale at your office.
- Make use of local community fundraising, and nominate the Mikaere Foundation for charity grants (such as Tesco Community Grants or similar)