ABOUT THE ROLE

We’re a charity that supports children with Nonketotic Hyperglycinemia (NKH), a rare and terminal metabolic disorder. We’re looking for someone to help us collate a collection of published research about NKH, mark whether it’s reliable/trustworthy and summarise any significance in a sentence.
 

This means:

• Searching for published papers about Nonketotic Hyperglycinemia/NKH/Glycine Encephalopathy
• Adding it to a spreadsheet
• Reading the research paper (ideally the whole paper, and not just the abstract)
• Noting the papers trustworthiness and anything of significance
• Writing a sentence summary in plain english.

This role is voluntary and unpaid, but is very flexible. Training will be given, and this is a great way to expand your knowledge of the charity sector and develop new skills.

PRACTICAL CONSIDERATIONS

• Minimum age 18
• Time commitment: flexible to fit in with your life commitments, but we ask for a virtual meet up every fortnight to discuss how things are going.
• Must have strong written and verbal communication skills and excellent organisational and time-management abilities.
• Self-motivated with the ability to work independently and as part of a team.
• Experience in medicine, biomed research, metabolic disorders, or a related field is a plus but enthusiasm is just as valued.