Thank you!

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Purchase an Eva or Charlie Book

We hold the rights to three books: Eva the Adventurer, Charlie the Crow and the NKH Charity Cookbook, which are available on Amazon. All the royalites from each sale go to NKH Research.

Thank you!

Your donations help fund vital research, giving hope to children and families who live with NKH.

Thank you for your donation –  we support families with NKH by providing the only patient informational website about NKH. However, thanks to generous sponsors, all donations collected allow us to  support the leading research done with Prof. Nick Greene at UCL/Great Ormond St Hospital, here in London, UK.

Because NKH is so rare, every pound has a direct tangible effect on the research that can be done.

£100,000 will pay for a years worth of research with one post grad researcher, and has the potential to move research forward by approximately 18 months.

Thank you for donating – we can’t do this without you!

Can you fundraise for us?

Because NKH is so rare, every single pound has a profound effect on what research can be done. Bake Sales, Raffles, a Coffee morning, a poker game… the possibilities are endless. Please help us fundraise – we’re so very keen to find effect treatments for children with NKH!

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