Skip to main content
Hit enter to search or ESC to close
Close Search
The Mikaere Foundation
Menu
  • What is NKH?
  • About
  • How to help
    • NKH 100 Mile Challenge
    • Fundraise for us
    • Volunteer
    • NKH Charity Cookbook!
    • Charlie + Eva Books
  • Donate
Join the NKH 100 Mile Challenge
Donate
NKH Charity Cookbook
Signed Charlie Books
Support the Mikaere Foundation via Amazon Smile
Donate via Justgiving
Buy a Charlie or Eva Book
Instagram
Facebook
Email
About

The Mikaere Foundation

The Mikaere Foundation works to provide information and support to families living with Nonketotic Hyperglycinemia (NKH). We also fund and work with partners in NKH Research to bring about effective treatment.

The Mikaere Foundation is a registered charity in England and Wales, charity number 1200720.

FUNDRAISE WITH US

Help us raise money for NKH Research. Help us help give Mikaere future. It sounds so cheesy, but holds a sobering amount of truth for us. NKH is terminal, without treatment kids like Mikaere may not have a future.

Privacy Policy

Follow us on Instagram

@mikaerefoundation

  • Thank you Bazaarvoice! BV is a tech company, and both Mikaere's parents have worked with Bazaarvoice over the last decade or so. We're lucky to have many friends and the support of the organisation in the UK and EMEA offices. Recently the London Office held a charity action and raised over £900, which will be sent (every penny!) to UCL, and the NKH Research team there.

Thanks BV - we appreciate you so much!

Would you be willing to put the Mikaere Foundation forward for your workplace Charity of the Year? Would your workplace be willing to partner with us? Let us know! We'd love to work with your organisation, and help them meet their Corporate Social Responsibility (CSR) goals :)

#nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #glycineencephalopathy #nkhcansuckit #fundraising #theMikaereFoundation #csr #csj #corporatesocialresponsibility #charitypartner #LiveBV #bazaarvoice @bvcommunity @bazaarvoiceemea @bazaarvoice
  • This is Leo, and his parents Maya and Rich. Leo was born in 2019, and enjoyed 24 blissful hours with his adoring parents before it became apparent that he was not very well. After being medi-Evac’d from the Cayman Islands to Miami and receiving expert care at Nicklaus Children’s Hospital, he was diagnosed with severe NKH and died peacefully in his Mum and Dads arms, just 8 days old. He was loved beyond measure and his parents are committed to making him proud by living a positive life, supporting others with neonatal struggles and helping advance NKH research forward. 

Over the lockdown, Leo's Grandma handmade beautiful cuddly animals, each carrying its own baby, which were auctioned to raise funds for essential research into finding a cure for NKH, and furthering Leo’s legacy. They raised well over £1650, of which every penny received will go to the NKH Research being done by Prof Nick Greene and his team at UCL. 

You can see the handmade animals, here: https://www.32auctions.com/Leoslegacy

Thank you to the Lewis Family - we appreciate you so much! 

#forleo #babyloss #babylossawareness #parentingafterloss #nkh #nkhbaby #leoslegacy #nonketotichyperglycinemia #nkhawareness #ifhnkh #metabolicdisorder #fundraising #glycineencephalopathy #theMikaereFoundation #nkhcansuckit @caribbeansnowflake
  • Thank you Infinis! Infinis is a British renewable energy group based in Northampton. They produce electricity from captured landfill and mineral methane. Mikaere's grandfather worked at Infinis prior to his retirement, and over the last six years, Infinis has been a huge supporter of NKH Research. 

They recently donated £500, which will be sent (every penny!) to UCL, and the NKH Research team there. 

Thanks Infinis - we appreciate you so much! 

Would you be willing to put the Mikaere Foundation forward for your workplace Charity of the Year? Would your workplace be willing to partner with us? Let us know! We'd love to work with your organisation, and help them meet their Corporate Social Responsibility (CSR) goals :) 

#nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #glycineencephalopathy #nkhcansuckit #fundraising #theMikaereFoundation #csr #csj #corporatesocialresponsibility #charitypartner
  • This is Laura and her sweet 3-month-old baby Teo. Teo has NKH, and for her recent birthday, Laura asked for donations to NKH Research, raising over £800! Every single penny goes to NKH Research, to the team under Prof. Nick Greene at UCL. 

Happy Birthday, Laura! We appreciate you so much! 

#nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #fundraising #happyBirthday #glycineencephalopathy #theMikaereFoundation #nkhcansuckit @laurachown
  • Wish you all a very festive holiday season! We're so grateful for all the love, support, and kindness we've been shown these last six months. We've raised thousands of pounds already for NKH Research, you've all been so supportive of the NKH Charity Cookbook, of Eva and Charlie (still!), you guys are *dream* supporters! 

Thank you to everyone who has undertaken challenges, made one-off donations, and an extra special thank you to our reoccurring monthly donors - we appreciate you so much! 

We really weren't expecting to start a charity, so to have had such a successful start out the gate has been so validating. We're the only UK NKH charity where 100% of all donations received go to NKH Research, all the overheads are covered by the founders. It means we can do more for NKH Research, and your donations go further. 

Happy holidays everyone - we're so grateful you're in our corner x

#dreamTeam #nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #teamMikaere #glycineencephalopathy #nkhcansuckit #fundraising #theMikaereFoundation #raredisease #cureNeeded #complexmedicalneeds #fundraising #grateful #happyHolidays
  • After months of work, the NKH Charity Cookbook is NOW AVAILABLE on Amazon, hurrah!!

UK/EU: https://amzn.eu/irjuCTs
USA: https://a.co/d/0iGbUga

The NKH community, friends and families have contributed over 150+ recipes for the NKH Charity Cookbook. It's home cooking at it's finest, with recipes submitted from all over the world.

Available in Kindle and Hardbook versions.

Thank you to everyone who has contributed a recipe, we couldn't have done this without you!

As always, the royalties of this book go to charity - The Mikaere Foundation is a registered charity in England and Wales (charity number 1200720). It raises funds to support research into NKH. It's the only NKH charity in the UK where 100% of the donations raised go to NKH Research.

Get your copy now! #linkinbio

#CharityCookbook #perfectChristmasGift #fundraising #nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #teamMikaere #glycineencephalopathy #nkhcansuckit #booksforWednesdays #teamMikaere #theMikaereFoundation
Thank you Bazaarvoice! BV is a tech company, and both Mikaere's parents have worked with Bazaarvoice over the last decade or so. We're lucky to have many friends and the support of the organisation in the UK and EMEA offices. Recently the London Office held a charity action and raised over £900, which will be sent (every penny!) to UCL, and the NKH Research team there.

Thanks BV - we appreciate you so much!

Would you be willing to put the Mikaere Foundation forward for your workplace Charity of the Year? Would your workplace be willing to partner with us? Let us know! We'd love to work with your organisation, and help them meet their Corporate Social Responsibility (CSR) goals :)

#nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #glycineencephalopathy #nkhcansuckit #fundraising #theMikaereFoundation #csr #csj #corporatesocialresponsibility #charitypartner #LiveBV #bazaarvoice @bvcommunity @bazaarvoiceemea @bazaarvoice
@mikaerefoundation
@mikaerefoundation
•
Follow
Thank you Bazaarvoice! BV is a tech company, and both Mikaere's parents have worked with Bazaarvoice over the last decade or so. We're lucky to have many friends and the support of the organisation in the UK and EMEA offices. Recently the London Office held a charity action and raised over £900, which will be sent (every penny!) to UCL, and the NKH Research team there. Thanks BV - we appreciate you so much! Would you be willing to put the Mikaere Foundation forward for your workplace Charity of the Year? Would your workplace be willing to partner with us? Let us know! We'd love to work with your organisation, and help them meet their Corporate Social Responsibility (CSR) goals :) #nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #glycineencephalopathy #nkhcansuckit #fundraising #theMikaereFoundation #csr #csj #corporatesocialresponsibility #charitypartner #LiveBV #bazaarvoice @bvcommunity @bazaarvoiceemea @bazaarvoice
3 days ago
View on Instagram |
1/6
This is Leo, and his parents Maya and Rich. Leo was born in 2019, and enjoyed 24 blissful hours with his adoring parents before it became apparent that he was not very well. After being medi-Evac’d from the Cayman Islands to Miami and receiving expert care at Nicklaus Children’s Hospital, he was diagnosed with severe NKH and died peacefully in his Mum and Dads arms, just 8 days old. He was loved beyond measure and his parents are committed to making him proud by living a positive life, supporting others with neonatal struggles and helping advance NKH research forward. 

Over the lockdown, Leo's Grandma handmade beautiful cuddly animals, each carrying its own baby, which were auctioned to raise funds for essential research into finding a cure for NKH, and furthering Leo’s legacy. They raised well over £1650, of which every penny received will go to the NKH Research being done by Prof Nick Greene and his team at UCL. 

You can see the handmade animals, here: https://www.32auctions.com/Leoslegacy

Thank you to the Lewis Family - we appreciate you so much! 

#forleo #babyloss #babylossawareness #parentingafterloss #nkh #nkhbaby #leoslegacy #nonketotichyperglycinemia #nkhawareness #ifhnkh #metabolicdisorder #fundraising #glycineencephalopathy #theMikaereFoundation #nkhcansuckit @caribbeansnowflake
@mikaerefoundation
@mikaerefoundation
•
Follow
This is Leo, and his parents Maya and Rich. Leo was born in 2019, and enjoyed 24 blissful hours with his adoring parents before it became apparent that he was not very well. After being medi-Evac’d from the Cayman Islands to Miami and receiving expert care at Nicklaus Children’s Hospital, he was diagnosed with severe NKH and died peacefully in his Mum and Dads arms, just 8 days old. He was loved beyond measure and his parents are committed to making him proud by living a positive life, supporting others with neonatal struggles and helping advance NKH research forward. Over the lockdown, Leo's Grandma handmade beautiful cuddly animals, each carrying its own baby, which were auctioned to raise funds for essential research into finding a cure for NKH, and furthering Leo’s legacy. They raised well over £1650, of which every penny received will go to the NKH Research being done by Prof Nick Greene and his team at UCL. You can see the handmade animals, here: https://www.32auctions.com/Leoslegacy Thank you to the Lewis Family - we appreciate you so much! #forleo #babyloss #babylossawareness #parentingafterloss #nkh #nkhbaby #leoslegacy #nonketotichyperglycinemia #nkhawareness #ifhnkh #metabolicdisorder #fundraising #glycineencephalopathy #theMikaereFoundation #nkhcansuckit @caribbeansnowflake
1 month ago
View on Instagram |
2/6
Thank you Infinis! Infinis is a British renewable energy group based in Northampton. They produce electricity from captured landfill and mineral methane. Mikaere's grandfather worked at Infinis prior to his retirement, and over the last six years, Infinis has been a huge supporter of NKH Research. 

They recently donated £500, which will be sent (every penny!) to UCL, and the NKH Research team there. 

Thanks Infinis - we appreciate you so much! 

Would you be willing to put the Mikaere Foundation forward for your workplace Charity of the Year? Would your workplace be willing to partner with us? Let us know! We'd love to work with your organisation, and help them meet their Corporate Social Responsibility (CSR) goals :) 

#nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #glycineencephalopathy #nkhcansuckit #fundraising #theMikaereFoundation #csr #csj #corporatesocialresponsibility #charitypartner
@mikaerefoundation
@mikaerefoundation
•
Follow
Thank you Infinis! Infinis is a British renewable energy group based in Northampton. They produce electricity from captured landfill and mineral methane. Mikaere's grandfather worked at Infinis prior to his retirement, and over the last six years, Infinis has been a huge supporter of NKH Research. They recently donated £500, which will be sent (every penny!) to UCL, and the NKH Research team there. Thanks Infinis - we appreciate you so much! Would you be willing to put the Mikaere Foundation forward for your workplace Charity of the Year? Would your workplace be willing to partner with us? Let us know! We'd love to work with your organisation, and help them meet their Corporate Social Responsibility (CSR) goals :) #nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #glycineencephalopathy #nkhcansuckit #fundraising #theMikaereFoundation #csr #csj #corporatesocialresponsibility #charitypartner
1 month ago
View on Instagram |
3/6
This is Laura and her sweet 3-month-old baby Teo. Teo has NKH, and for her recent birthday, Laura asked for donations to NKH Research, raising over £800! Every single penny goes to NKH Research, to the team under Prof. Nick Greene at UCL. 

Happy Birthday, Laura! We appreciate you so much! 

#nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #fundraising #happyBirthday #glycineencephalopathy #theMikaereFoundation #nkhcansuckit @laurachown
@mikaerefoundation
@mikaerefoundation
•
Follow
This is Laura and her sweet 3-month-old baby Teo. Teo has NKH, and for her recent birthday, Laura asked for donations to NKH Research, raising over £800! Every single penny goes to NKH Research, to the team under Prof. Nick Greene at UCL. Happy Birthday, Laura! We appreciate you so much! #nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #fundraising #happyBirthday #glycineencephalopathy #theMikaereFoundation #nkhcansuckit @laurachown
2 months ago
View on Instagram |
4/6
Wish you all a very festive holiday season! We're so grateful for all the love, support, and kindness we've been shown these last six months. We've raised thousands of pounds already for NKH Research, you've all been so supportive of the NKH Charity Cookbook, of Eva and Charlie (still!), you guys are *dream* supporters! 

Thank you to everyone who has undertaken challenges, made one-off donations, and an extra special thank you to our reoccurring monthly donors - we appreciate you so much! 

We really weren't expecting to start a charity, so to have had such a successful start out the gate has been so validating. We're the only UK NKH charity where 100% of all donations received go to NKH Research, all the overheads are covered by the founders. It means we can do more for NKH Research, and your donations go further. 

Happy holidays everyone - we're so grateful you're in our corner x

#dreamTeam #nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #teamMikaere #glycineencephalopathy #nkhcansuckit #fundraising #theMikaereFoundation #raredisease #cureNeeded #complexmedicalneeds #fundraising #grateful #happyHolidays
@mikaerefoundation
@mikaerefoundation
•
Follow
Wish you all a very festive holiday season! We're so grateful for all the love, support, and kindness we've been shown these last six months. We've raised thousands of pounds already for NKH Research, you've all been so supportive of the NKH Charity Cookbook, of Eva and Charlie (still!), you guys are *dream* supporters! Thank you to everyone who has undertaken challenges, made one-off donations, and an extra special thank you to our reoccurring monthly donors - we appreciate you so much! We really weren't expecting to start a charity, so to have had such a successful start out the gate has been so validating. We're the only UK NKH charity where 100% of all donations received go to NKH Research, all the overheads are covered by the founders. It means we can do more for NKH Research, and your donations go further. Happy holidays everyone - we're so grateful you're in our corner x #dreamTeam #nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #teamMikaere #glycineencephalopathy #nkhcansuckit #fundraising #theMikaereFoundation #raredisease #cureNeeded #complexmedicalneeds #fundraising #grateful #happyHolidays
2 months ago
View on Instagram |
5/6
After months of work, the NKH Charity Cookbook is NOW AVAILABLE on Amazon, hurrah!!

UK/EU: https://amzn.eu/irjuCTs
USA: https://a.co/d/0iGbUga

The NKH community, friends and families have contributed over 150+ recipes for the NKH Charity Cookbook. It's home cooking at it's finest, with recipes submitted from all over the world.

Available in Kindle and Hardbook versions.

Thank you to everyone who has contributed a recipe, we couldn't have done this without you!

As always, the royalties of this book go to charity - The Mikaere Foundation is a registered charity in England and Wales (charity number 1200720). It raises funds to support research into NKH. It's the only NKH charity in the UK where 100% of the donations raised go to NKH Research.

Get your copy now! #linkinbio

#CharityCookbook #perfectChristmasGift #fundraising #nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #teamMikaere #glycineencephalopathy #nkhcansuckit #booksforWednesdays #teamMikaere #theMikaereFoundation
After months of work, the NKH Charity Cookbook is NOW AVAILABLE on Amazon, hurrah!!

UK/EU: https://amzn.eu/irjuCTs
USA: https://a.co/d/0iGbUga

The NKH community, friends and families have contributed over 150+ recipes for the NKH Charity Cookbook. It's home cooking at it's finest, with recipes submitted from all over the world.

Available in Kindle and Hardbook versions.

Thank you to everyone who has contributed a recipe, we couldn't have done this without you!

As always, the royalties of this book go to charity - The Mikaere Foundation is a registered charity in England and Wales (charity number 1200720). It raises funds to support research into NKH. It's the only NKH charity in the UK where 100% of the donations raised go to NKH Research.

Get your copy now! #linkinbio

#CharityCookbook #perfectChristmasGift #fundraising #nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #teamMikaere #glycineencephalopathy #nkhcansuckit #booksforWednesdays #teamMikaere #theMikaereFoundation
@mikaerefoundation
@mikaerefoundation
•
Follow
After months of work, the NKH Charity Cookbook is NOW AVAILABLE on Amazon, hurrah!! UK/EU: https://amzn.eu/irjuCTs USA: https://a.co/d/0iGbUga The NKH community, friends and families have contributed over 150+ recipes for the NKH Charity Cookbook. It's home cooking at it's finest, with recipes submitted from all over the world. Available in Kindle and Hardbook versions. Thank you to everyone who has contributed a recipe, we couldn't have done this without you! As always, the royalties of this book go to charity - The Mikaere Foundation is a registered charity in England and Wales (charity number 1200720). It raises funds to support research into NKH. It's the only NKH charity in the UK where 100% of the donations raised go to NKH Research. Get your copy now! #linkinbio #CharityCookbook #perfectChristmasGift #fundraising #nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #teamMikaere #glycineencephalopathy #nkhcansuckit #booksforWednesdays #teamMikaere #theMikaereFoundation
3 months ago
View on Instagram |
6/6

© 2023 The Mikaere Foundation.

  • facebook
  • instagram
  • email
Close Menu
  • What is NKH?
  • About
  • How to help
    • NKH 100 Mile Challenge
    • Fundraise for us
    • Volunteer
    • NKH Charity Cookbook!
    • Charlie + Eva Books
  • Donate