Raise funds for Research into Nonketotic Hyperglycinemia (NKH)

Currently, there is no effective treatment for NKH. Medicines currently available for Nonketotic Hyperglycinemia do not stop the progression or relieve symptoms of the neurometabolic disorder.

We’re partnered with UCL and the team under Prof. Nick Greene to better understand the disorder progression and to develop novel therapies, such as gene replacement therapy.

Provide clear information about NKH for families and the medical professionals who support them

When a child is diagnosed with NKH, it is very rare that they are given any information. It can be a very scary time.

We provide accredited and trusted patient information via the NKH Info Booklet and the patient website: foundationnkh.org. Both share in-depth medical knowledge about Nonketotic Hyperglycinemia (NKH) for those who need it.

Provide support for families living with Nonketotic Hyperglycinemia

We hold Family Meet Ups for the NKH Community here in the UK. Family meet ups can offer connection, emotional support and provide a safe space to share struggles, find empathy and reduce isolation for families. It also provides an opportunity for families to pool knowledge and share practical resources/tips for raising a child with NKH.

We support families wherever we can. When we can see a need that will help the experience of families living with NKH, we’re working towards a solution.

Donate to the Mikaere Foundation

It is only thanks to your donations that we can give life-threatened children and their families the hope and support they need.

Fundraise for the Mikaere Foundation

Choose a challenge, pledge your birthday or let us inspire you with some great fundraising ideas.

Volunteer with the Mikaere Foundation

We have a few open roles, if you have the specialist skills needed (or, if you just want to lend a hand!) – get involved!